BY-COVID Fest - Training in data sharing and reuse under GDPR IDTk contentathon
23 January 2024
The BY-COVID Fest is a face to face event that will host two parallel but strongly connected streams on 23-25 January 2024 in the Hotel Amalia in Athens, Greece.
The training stream on Data sharing and reuse under GDPR will feature lectures from experts, real-case and demo sessions, and workshops where participants can reflect on and collect experiences, issues and solutions. It aims to empower data users and producers to become confident in submitting or using sensitive data, express their questions and issues to professionals in their institutions, and find solutions for their sensitive data issues.
The IDTk contentathon stream will bring together all those willing to contribute to the Infectious Disease Toolkit (IDTk) pages, especially the attendees of the Data sharing and reuse under GDPR session but not only. Participants will also include IDTk editors, BY-COVID partners, sibling project partners, etc. The contentathon participants will contribute to writing general guidelines for data handling, analysis and visualisations in the context of infectious diseases. We are particularly looking forward to the contributions of our colleagues working with Socioeconomic data, but all the others are welcome to participate.
Preliminary Agenda
| Training - Data sharing and reuse under GDPR | IDTk contentathon | |
| 23 Jan, Tue 09:30 - 12:00 | Walking tour for those who want to visit Athens and exercise a bit before starting the real work. | |
| 12:30 - 14:00 | Lunch and name tags distribution | |
| 14:00 - 14:20 | Welcome and icebreaker - Chair: Patricia Palagi | |
| 14:20 - 16:00 | Session 1 - Introduction to GDPR - Chairs: Dimitra Kondyli, Irena Vipavc, Sonja Bezjak Keynote speaker: Data protection in pandemic times: is the general data protection regulation (GDPR) adequate to share sensitive data? - Prof. Lilian Mitrou (University of the Aegean) Lecture: GDPR and infectious diseases - Erdina Ene (Legal Expert, BBMRI ERIC) | Meeting notes for IDTK contentathon Writing content - Chairs: Rafael Andrade Buono & Hedi Peterson Introduction and goals |
| 16:00 - 16:30 | Coffee break | |
| 16:30 - 19:00 | Workshop: challenges and issues when dealing with sensitive data Open discussion with speakers and participants | Writing content - Chairs: Rafael Andrade Buono & Hedi Peterson |
| 19:00 - 21:00 | Networking event and working dinner | |
| 24 Jan, Wed 9:00 - 10:30 | Session 2 - Anonymisation and pseudonymisation - Lecture, real-case examples and demos session: Carola Schulz (Empirica). Setting the scene: Anonymisation and Pseudonymisation in GDPR, Data Governance Act, ISO and EHDS Regulation, Health data - Carola Schulz (Empirica). A DPO’s account on health data de-personalisation: the MES-CoBraD case - Sergi Vazquez Maymir (VUB) Hands on social sciences data anonymisation - Irena Vipavc (ADP/CESSDA) | Writing content - Chairs: Rafael Andrade Buono & Hedi Peterson Round table with progress report and pain points for the different pages |
| 10:30 - 11:00 | Coffee break | |
| 11:00 - 12:30 | Session 2 - Anonymisation and pseudonymisation (cont.) Hands on social sciences data anonymisation - Irena Vipavc (ADP/CESSDA) (cont.) Manolis Terrovitis (Athena Research Center) | Writing content - Chairs: Rafael Andrade Buono & Hedi Peterson |
| 12:30 - 14:00 | Lunch | |
| 14:00 - 15:30 | Session 3 - How to make your sensitive data FAIR, challenges and use-cases session - Chair: Vasso Kalaitzi Introduction to the session - Vasso Kalaitzi (DANS) (5’) General Q&A (10’) | Writing content - Chairs: Rafael Andrade Buono & Hedi Peterson |
| 15:30 - 16:00 | Coffee break | |
| 16:00 - 18:00 | All participants to contribute to the IDTK pages on Ethical, Legal and Social issues for all the domains - Chairs: Rafael Andrade Buono & Hedi Peterson | |
| 19:00 - 21:00 | Networking and working dinner | |
| 25 Jan, Thu 9:00 - 10:30 | IDTK contentathon session dedicated to the socioeconomic pages - participants from the socioeconomic field to contribute to the IDTK pages - Chairs: Rafael Andrade Buono & Hedi Peterson Round table - Goals of the day | |
| 10:30 - 11:00 | Coffee break | |
| 11:00 - 12:00 | IDTK contentathon (cont.) | |
| 12:00 - 12:30 | Next steps | |
| 12:30 - 14:00 | Lunch and departures | |
Location
The BY-COVID Fest will take place in person at the Hotel Amalia:
10 Amalias Avenue
10557 Syntagma
Athens, Greece
A few accommodation rooms in the same venue have been pre-booked for three nights (arrival on 22/01 and departure on 25/01). You can pre-book your accommodation in the application form.
Travel expenses
The BY-COVID project has set aside funds to cover travel and accommodation expenses of a limited number of attendees who are not BY-COVID consortium members. You will receive information about accommodation and reimbursement of travel expenses once you have been notified of your successful registration. You will be expected to make your own travel arrangements to the venue.
If you are a BY-COVID consortium member:
- The BY-COVID WP6 will pay for your accommodation in the Hotel Amalia if you choose this option in the application form. You can also stay in another hotel and pay for your accommodation expenses with your own BY-COVID travel funds.
- You will need to make your own travel arrangements to the venue and cover your travel expenses with your own BY-COVID funds.
Applications
The applications are now closed and all those who have been accepted have received a message of confirmation.
Organising committee
- Patricia Palagi - SIB/ELIXIR-CH
- Dimitra Kondyli - EKKES
- Irena Vipavc - ADP/CESSDA
- Sonja Bezjak - ADP/CESSDA
- Vasso Kalaitzi - DANS
- Simon Saldner - DANS
- Rafael Andrade Buono - VIB/ELIXIR-BE
- Hedi Peterson - University of Tartu